What Happens If My Child Doesn’t Have Surgery? Understanding the Cost of Delay
“Let’s wait and see” is one of the most common responses to a surgical recommendation, and it’s sometimes exactly right. It’s also sometimes quietly costly in ways that only become visible years later. This article uses the best quantified evidence available, mostly from hip health, since it’s the most precisely measured, to show what waiting actually costs and when.
Why “wait and see” feels like the safe choice
It’s a completely understandable instinct. Surgery feels irreversible and frightening in a way that continuing physiotherapy doesn’t. A child who seems stable right now doesn’t feel like an emergency. And there’s a natural hope that things might simply resolve on their own, or that the child will “grow into” better function.
The honest answer is that waiting is sometimes exactly the right call, and sometimes it quietly costs more than families realise, because the cost doesn’t show up immediately. It shows up as a slightly worse starting point at the next assessment, then the one after that, until a procedure that could once have been simpler and safer has become bigger and riskier. This article is about making that trade-off visible rather than invisible.
A worked example: what the hip numbers actually show
Hip health in CP is tracked using a specific, well validated measurement: the migration percentage (MP), essentially what proportion of the ball of the hip joint has slipped out of its socket. Because it’s a number, not an impression, it gives an unusually clear picture of what “waiting” actually does over time.
Normal to borderline
Routine surveillance is generally all that’s needed. For children walking independently with low GMFCS levels, a single normal scan in early childhood may be enough with no further monitoring required.
The hip is officially “at risk”
The well documented natural history past this point is continued displacement, not stability, without some form of intervention. This is the point where surveillance needs to tighten, not loosen.
The typical surgical window
Correction is generally indicated in this range, and outcomes tend to be better the earlier within this window treatment happens rather than later.
Even successful surgery becomes less reliable
Research has found a statistically significant, nearly fourfold increase in the odds of the hip redislocating even after reconstructive surgery once migration has reached this level. Delay here doesn’t just mean bigger surgery; it means less certain surgery.
Pooled data across population studies found roughly a third of children with CP develop hip displacement past the 30% at-risk threshold, and in non-ambulatory children specifically, progressive migration has been observed in a substantial proportion, up to 45 to 90% depending on the population studied. This isn’t a rare edge case; it’s a mainstream part of the natural history for many children with more significant spasticity, which is exactly why surveillance protocols exist in the first place.
Earlier really is measurably better, not just theoretically
This isn’t only a logical inference; it’s been demonstrated directly. One study compared outcomes before and after a national hip surveillance guideline was introduced, tracking the migration percentage recorded at the time of surgery.
Median migration percentage at time of surgery
Lower migration percentage at the time of surgery was significantly linked to better outcomes afterward. Separately, research on complications after hip reconstruction has identified older age at surgery and higher preoperative migration percentage as established predictors of avascular necrosis, a serious complication where the blood supply to the femoral head is disrupted. Both findings point the same direction: the same surgery, performed earlier on a less advanced hip, is measurably safer and more likely to hold.
The two clocks running at once
The neuroplasticity clock
The brain’s capacity to build new functional pathways in response to intensive therapy is highest in the first several years of life. Reducing spasticity surgically during this window, then following with intensive physiotherapy, tends to produce better long-term function than delaying the same procedure into later childhood, when this capacity has naturally declined.
The structural clock
Contractures and hip displacement become more established, and correspondingly harder and riskier to correct, the longer they progress unaddressed. The hip data above is the clearest quantified example, but the same underlying logic applies to soft tissue contractures more broadly.
Neither clock is a reason to rush any individual family into a decision they’re not ready for. Both are reasons to treat “we’ll revisit this later” as something that needs a specific next checkpoint, rather than an indefinite pause.
Good waiting versus costly delay
The distinction that actually matters isn’t waiting versus not waiting. It’s monitored versus unmonitored.
- Hip X-rays on a defined schedule, typically every 6 to 12 months for children with significant spasticity
- Periodic Modified Tardieu Scale reassessment to track whether spasticity is becoming more structural over time
- A clear, specific date or milestone for the next reassessment, not an open-ended “later”
- Honest tracking of whether physiotherapy is still producing functional gains, not just being attended
- No scheduled hip X-rays, or scans that get pushed back repeatedly without a specific reason
- No reassessment of whether spasticity has shifted from dynamic toward fixed
- “We’ll think about it again eventually” with no defined trigger for revisiting the decision
- Assuming stability without measuring it, simply because nothing dramatic has happened recently
If your family is genuinely doing the version on the left, waiting can be a perfectly reasonable, evidence-informed choice. If it’s drifted into the version on the right, that’s worth naming honestly and correcting, not because surgery is always the answer, but because an unmonitored “later” is where the quiet, measurable cost described in this article actually accumulates.
Want an honest assessment of where your child’s specific situation currently sits, and what a reasonable next checkpoint looks like?
Request a free remote evaluation →Frequently asked questions
What actually happens to a hip left untreated in cerebral palsy?
Past a migration percentage of 30%, the hip is considered at risk, and the documented natural history is continued displacement toward dislocation without intervention. Correction is typically indicated between 40 and 60%. Past around 70%, research found a nearly fourfold increase in the odds of redislocation even after successful reconstructive surgery, meaning delay eventually makes even surgical correction less reliable.
Does earlier hip surgery actually produce better results?
Yes, directly demonstrated. One study found the median migration percentage at surgery dropped from 75% to 39% after a national surveillance guideline was introduced, and lower preoperative migration percentage was linked to significantly better outcomes. Older age and higher preoperative migration percentage are both established predictors of avascular necrosis, a serious surgical complication.
Is “wait and see” always the wrong approach?
No. Active surveillance, meaning scheduled reassessment with real measurements at defined intervals, is legitimate and often correct for many children. What carries real cost is skipping surveillance entirely and treating “we’ll revisit this later” as a decision rather than a plan with a specific next checkpoint.
Why does age matter so much in this decision?
Two clocks run simultaneously. The neuroplasticity window, when the brain most readily builds new pathways in response to therapy, is highest early in childhood. Structurally, contractures and hip displacement become more established and harder to correct the longer they’re left unaddressed. Both point toward earlier assessment being lower risk, not toward rushing any individual decision.
What is a reasonable surveillance schedule if we choose to wait?
For independently walking children with low GMFCS levels, a single normal early scan may be sufficient. For children with more significant spasticity, hip X-rays every 6 to 12 months until skeletal maturity is standard. Alongside this, periodic Modified Tardieu Scale reassessment and honest tracking of whether physiotherapy is still producing gains both give concrete markers of whether waiting is genuinely stable.
Does delaying surgery make the eventual procedure more invasive?
Often, yes, especially for hip displacement, where lower migration percentages at surgery are linked to less invasive procedures and better retained correction, while higher percentages, especially above 70%, carry meaningfully higher failure risk. For contractures more broadly, a fixed contracture that developed from years of unaddressed spasticity typically needs a different, more involved surgical approach than the same muscle would have needed earlier.
References
- “Hip displacement in children with cerebral palsy: surveillance to surgery, a current concepts review.” SICOT-J. SICOT-J ↗
- “Hip Surveillance in Cerebral Palsy: The Importance of Doing It Early and Often.” Children’s Hospital of Philadelphia. CHOP ↗
- Lins LAB, Watkins CJ, Shore BJ. (2019). “Natural History of Spastic Hip Disease.” Journal of Pediatric Orthopaedics. PubMed ↗
- “Reimers Migration Percentage in Cerebral Palsy Hip Displacement: A Literature-Based Rationale and Statistical Optimization From a Retrospective Cohort.” PMC. PMC ↗
- “Timely Surgical Intervention Leads to Better Sustained Coverage after Reconstructive Hip Surgery in Patients with Cerebral Palsy.” PMC. PMC ↗
- “Fate of hips complicated by avascular necrosis of the femoral head following reconstructive surgery in nonambulatory patients with cerebral palsy.” PMC. PMC ↗